The Michael J. Fox Foundation Annual Report 2015 – Purpose. Partnership. Progress. | Page 48
Mobilizing the PD
Community Online
TEAM FOX IS JUST ONE WAY THAT PEOPLE LIVING WITH PARKINSON’S AND LOVED ONES
CAN ENGAGE WITH MJFF’S WORK. THEY ALSO HAVE A CRITICAL ROLE in helping speed a cure
through research participation. And MJFF continues to provide new opportunities to infuse research
priorities and design with the patient’s voice, including through technology-enabled solutions.
In March, the Foundation launched Fox Insight, a virtual clinical trial and portal for volunteers
to contribute data, including how “off” periods impact daily activities and non-motor symptoms
may shift over time. Participants add to a vast dataset from the convenience of their own homes,
helping researchers identify medical needs and reliable measures of the disease. Data collected
through Fox Insight is de-identified and will be made available to researchers worldwide for
independent study.
More than 4,000 people to date have contributed data via home computer, mobile phone or
smartwatch that can help speed research. Volunteers also can use Fox Insight to optimize their
care by tracking symptom frequency and severity for clinician visits, helping them provide a clear
snapshot of their PD.
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The Michael J. Fox Foundation